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"The only thing that all of the people with APS Type 1 have in common is the will to survive" -- Pablo Ramírez

 
March 2010
 
 
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Resources:


Nord (National Organization for Rare Disorders) - download the complete report here courtesy of Nord. 

Oxford Journals Human Molecular Genetics paper on the Gene defect behind APECED: a new clue to autoimmunity

MedicineNet.com - Doctors' Views on Autoimmune Polyglandular Syndrome…Exploring Autoimmunity

Molecular Basis of Autoimmune Polyendocrinopathy - Candidiasis - Ectodermal Dystrophy (APECED) by Maria Halonen

Yahoo Groups - Forum on aps 1/apeced

Sample Hospital Letter - When going to a hospital it is a good idea to have a letter to detail current medications and treatments. We have provided a sample hospital letter for you to use as a model.

Improved Understanding Of Autoimmune Diseases From Discovery Of New Protein - article on Medical News Today

Related Diseases/Disorders:


Hypoparthyroidism -Hypoparathyroidism Association
Addison's Disease - forum and The National Adrenal Disease Foundation
Ovarian Failure - International Premature Ovarian Failure Association
Type 1 Diabetes - American Diabetes Assoc
Ectodermal Dystrophy
Vitiligo - National Vitiligo Foundation
 

Other Information:


Autoimmune polyendocrine syndrome type I in Slovakia: relevance of screening patients with autoimmune Addison's disease.
Autoimmune polyendocrine syndrome type 1 and NALP5, a parathyroid autoantigen.
Polyglandular Autoimmune Syndrome, Type I