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"The only thing that all of the people with APS Type 1 have in common is the will to survive" -- Pablo Ramírez

 
September 2010
 
 
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 Hi all,


I am emailing with a question. My daughter Makenzie is 15 ½ with APS. She has autoimmune hepatitis, hypoparathyroidism, and Addison’s. My question is this. Have any of you dealt with joint pain? This past month she hurts- her wrists, knees, angles as she puts it – her bones. At this point my only lead is possibly it is from being on the steroids. We have been battling liver functions without a break for about 4 years and she hasn’t gotten off steroids for about 2 of those years. Any other suggestions out there? Just wondering if anyone else has experienced this.


Thanks for your help

response

Posted by dr at Oct 12, 2009 11:12 AM
Dear Paula,

This could be due to metaphyseal dysplasia. To diagnose this, you would need an X-ray of the affected joints. Usually this problem retreats with puberty.

Noel Maclaren MD