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"The only thing that all of the people with APS Type 1 have in common is the will to survive" -- Pablo Ramírez

 
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How long has the medical community been aware of this disease? and what are the expectations for adulthood and normal long life? Thank you

how long has the medical community been aware of this disease?

Posted by dr at Oct 31, 2007 02:04 PM
APS-1 has been officially known since 1980 when Dr Bob Blizzard Michel Neufeld and I first reported it. Now that the APS-1 is a recognizable and absolutely diagnosable entity, life expectancy should approach normal